April 24, 2018

Charlie Gard will end his days in a palliative care unit

28 July 2017, 12:21 | Leigh Flowers

Jorja Emerson’s parents say she has been ‘left to die’ by UK doctors

Parents of baby with rare disease inspired by Charlie Guard fight to get more treatment

But a lawyer for Charlie's court-appointed guardian told the court that no hospice could provide care for intensively ventilated children for a long time, so the parents' wish to spend several days with him could not be fulfilled.

On Monday, Christ Gard and Connie Yates, the boy's parents, announced that they were ending their legal fight for additional treatment for their son.

But they ran into opposition from Great Ormond Street hospital in London, where Charlie is on life support, which said that because of the difficulties of providing invasive ventilation at home and the potential for problems, that would not be possible.

Mr Justice Francis in April ruled in favour of Great Ormond Street and said Charlie should be allowed to die with dignity.

Charlie's mother, Connie Yates, became distressed as the judge made his decision.

The hospital said it had found an "excellent hospice" with the space and privacy, and the facilities needed. May I pay tribute to these nurses'.

Armstrong said hospital officials were placing obstacles in Charlie's parents' way.

Charlie requires invasive ventilation to breathe and can not see, hear or swallow.

The presiding judge said if both parties cannot come to an agreement by Thursday, July 27, Charlie will be moved to a hospice and his life support will be withdrawn soon after.

Doctors at Great Ormond Street said the therapy would not help and that life-support treatment should stop.

Butler-Cole said the parents should spend the last few days of Charlie's life with him, not with their lawyers.

But GOSH and Charlie's parents were still in dispute over details of the final care plans.

Doctors at Great Ormond Street opposed that, saying it would not help and could cause Charlie more suffering.

The decision concludes a bitter five-month legal fight from Ms Yates and Mr Gard, whose appeal to give their son treatment was previously rejected by the European Court of Human Rights.

Bambino Gesu hospital had offered to treat the 11-month-old while his parents were trying to persuade British courts to tell a London hospital to release the boy for treatment in the United States.

He said he had gone out of his way to accommodate the parent's wishes, but he had to consider Charlie's best interests.

Dr Michio Hirano, an American neurology expert from Columbia Medical, previously said he believed there was at least a 10% chance his NBT therapy could improve Charlie's condition. "We can not know if Charlie would have responded to the experimental therapy".

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